hello my dear friends, I really need your help and I really hope that I’ll find somebody that will be able to help me. My son is 13 months old and some days ago I have found out that he has a strange rare muscular dystrophy called, muscular eye brain disease. I was so scared and I think that you can imagine what I feel now. When I arrived home the first thing that I did is to search for people that have had the same thing and that can explain how is to live with such a thing. I was very surprised that I found no information about this and that even in description there aren’t so many things. This scares me a lot; I thought that you can find everything that you want in internet, and now that after I searched and found nothing I started to be more worried about my baby situation, please help me and tell me that there are people that have the same thing, tell me please that there is nothing to worry about. I really need to hear this.